Wednesday, November 14, 2007

My long list of SymPtoms

Just so you know when you read this list...I am a healthy, active, normally functioning adult:) For the most part, these symptoms come and go. You wouldn't look at me and think, "gosh she's a sicky."

These are the reasons I suspect celiac:
  1. gas (frequent, not constant)
  2. missed menstrual periods*
  3. PCOS (polycystic ovarian syndrome)*
  4. cold sores (1x/6-8weeks outside mouth)*
  5. mouth ulcers (4x/year inside mouth)*
  6. hair loss/thinning*
  7. feelings of unbalance/dizziness
  8. tight muscles* (chronic, everyday)
  9. migraine headaches (1x/every other month)
  10. congested pores/combination complexion*
  11. mild asthma (rarely flares up)
  12. irritability*
  13. was a very colicky baby
  14. not breastfed as a baby
  15. petite stature
  16. several years ago i had emergency abdominal surgery for excruciating pain and no one knew what caused it*
On second thought...
2&3 - menstrual issues - but these could be due to genes or stress or a whole bunch of other reasons

4 - cold sores - but these could be caused by stress, high arginine/low lysine diet, weather, menstruation

5 - mouth ulcers - but these could be caused by poor diet, poor dental hygiene

6 - hair loss - but this could be due to iron deficiency (which could be due to celiac) or the aging process

8&12 - tight muscles & irritability - but these could be from running after a toddler all day long

10 - bad complexion - this could be because of genes or unhealthy diet (but I do eat pretty healthy i.e. no fast food)

This is why celiac disease is so hard to diagnose because the symptoms are so varied from person to person. No one has the same ones.

Now the Kicker...
15 - it's possible that my guts were so damaged from celiac disease that i landed in the hospital getting my belly operated on a few years ago. the docs could not give any explanation for my pain. now i have a 6 inch scar for no apparent reason.

but I may be getting an answer soon when the tests come back. i've been waiting for one.

2 comments:

Andre said...

Hi there,

Some of those symptoms are indeed related to Celiac Disease. Since you're not diagnosed yet, I have to recommend you to not stop eating gluten yet - because the exams will be much more accurate if you don't. If you stop, the antibodies will vanish too and the tests can be misleading. There are also Specific Celiac Disease tests which you can order online if you feel curious. I had one before I talked to my doctor about it actually. Doctors usually think this is a rare disease and don't pay much attention to it, or can diagnose you with other conditions that do not have much to do with Celiac Disease. Good luck and keep us posted. Thanks for your comment on my site too by the way!

NOTE: If you do have it, make sure you check your son/daughter too! ;)

SuspectCeliac said...

andre - thanks for the tip. as much as i'd like to give up gluten (even for just 3 months if tests come back negative), i know i have to keep eating it until the results come back. ugh.

I didn't know about the online test - thanks for giving me the heads up.
:)